Epilepsy research news
Supporting the community and improving care
26 March 2020
What does it mean to be the recipient of a long-term care plan, and what do we know of patients’ experiences of consultations where important, often life-changing conversations take place? How do patients respond to an unexpected diagnosis or a prognosis of long-term ill health, and how would patients wish to be better supported during clinical interactions?
The Implementation Science research group led by Professor Frances Rapport employs qualitative and multi-methods approaches to address health services research questions aiming to clarify the social, emotional, and physical determinants of ill-health.
In support of Purple Day 2020 for epilepsy awareness, a collection of research publications in the field of epilepsy are provided below. If you cannot access a publication, please contact us to request a copy.
Journal publications:
Hospital service utilization trajectories of individuals living with epilepsy in New South Wales, Australia, 2012–2016 : a population-based study. Lystad, Reidar P.; Rapport, Frances; Bleasel, Andrew; Herkes, Geoffrey; Nikpour, Armin; Mitchell, Rebecca. In: Epilepsy and Behavior, Vol. 105, 106941, 01.04.2020, p. 1-7. https://www.ncbi.nlm.nih.gov/pubmed/32062105
Enhancing quality of life among epilepsy surgery patients : interlinking multiple social and relational determinants. Shih, Patti; Francis-Auton, Emilie; Nikpour, Armin; Herkes, Geoffrey ; Bleasel, Andrew; Rapport, Frances. In: Epilepsy and Behavior, Vol. 102, 106721, 01.01.2020, p. 1-8. https://www.sciencedirect.com/science/article/pii/S1525505019308054?via%3Dihub
Promoting faster pathways to surgery : a clinical audit of patients with refractory epilepsy. Mumford, Virginia; Rapport, Frances; Shih, Patti; Mitchell, Rebecca; Bleasel, Andrew; Nikpour, Armin; Herkes, Geoffrey; MacRae, Amy; Bartley, Melissa; Vagholkar, Sanjyot; Braithwaite, Jeffrey. In: BMC neurology, Vol. 19, No. 1, 29, 19.02.2019, p. 1-9. https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-019-1255-0
Determinants of health and wellbeing in refractory epilepsy and surgery : the Patient Reported, ImpleMentation sciEnce (PRIME) model. Rapport, Frances; Shih, Patti; Faris, Mona; Nikpour, Armin; Herkes, Geoffrey; Bleasel, Andrew; Kerr, Mike; Clay-Williams, Robyn; Mumford, Virginia; Braithwaite, Jeffrey. In: Epilepsy and Behavior, Vol. 92, 01.03.2019, p. 79-89. https://doi.org/10.1016/j yebeh.2018.11.027.
Examining health service utilization, hospital treatment cost, and mortality of individuals with epilepsy and status epilepticus in New South Wales, Australia 2012–2016. Mitchell, Rebecca J.; Herkes, Geoffrey; Nikpour, Armin; Bleasel, Andrew; Shih, Patti; Vagholkar, Sanjyot; Rapport, Frances. In: Epilepsy and Behavior, Vol. 79, 01.02.2018, p. 9-16. https://doi.org/10.1016/j.yebeh.2017.11.02279.
Leading up to saying "yes" : a qualitative study on the experience of patients with refractory epilepsy regarding presurgical investigation for resective surgery. Shih, Patti; Nikpour, Armin; Bleasel, Andrew; Herkes, Geoffrey K.; Mitchell, Rebecca; Seah, Rebecca; Mumford, Virginia; Braithwaite, Jeffrey; Vagholkar, Sanjyot; Rapport, Frances. In: Epilepsy and Behavior, Vol. 83, 06.2018, p. 36-43. https://www.ncbi.nlm.nih.gov/pubmed/29649672
Better evidence for earlier assessment and surgical intervention for refractory epilepsy (The BEST study) : a mixed methods study protocol. Rapport, Frances; Shih, Patti; Mitchell, Rebecca; Nikpour, Armin; Bleasel, Andrew; Herkes, Geoffrey; Vagholkar, Sanjyot; Mumford, Virginia. In: BMJ Open, Vol. 7, No. 8, e017148, 2017, p. 1-11. https://bmjopen.bmj.com/content/7/8/e017148
Qualitative research and its methods in epilepsy : Contributing to an understanding of patients' lived experiences of the disease. Rapport, Frances; Clement, Clare; Doel, Marcus A.; Hutchings, Hayley A. In: Epilepsy and Behavior, Vol. 45, 01.04.2015, p. 94-100. https://doi.org/10.1016/j.yebeh.2015.01.040.
Non peer reviewed publication:
Navigating the healthcare maze: A new model of care for epilepsy. Rapport, Frances. (2019) The Health Advocate (Official Magazine for Australian Healthcare and Hospitals Association). Issue 52, February 2019, 48-49. https://ahha.asn.au/system/files/docs/publications/feb2019_tha_web.pdf
Current Projects:
Better evidence for earlier identification and surgical intervention for refractory epilepsy
Media inquires:
Professor Frances Rapport is available for interview, please contact Chrissy Clay chrissy.clay@mq.edu.au
CENTRES RELATED TO THIS NEWS
Centre for Health Systems and Safety Research
FOR FURTHER INFORMATION, PLEASE CONTACT
Chrissy Clay, Research Outreach Coordinator
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