Much is made of the patient experience, but what does it mean to be the recipient of a long-term care plan, and what do we know of patients’ experiences of consultations where important, often life-changing conversations take place? How do patients respond to an unexpected diagnosis or a prognosis of long-term ill health, and how would patients wish to be better supported during clinical interactions? Professor Frances Rapport’s work, driving the Implementation Science stream, employs qualitative and multi-methods approaches to address health services research questions through trials, exploratory and complex study designs. The research of the stream aims to clarify the social, emotional, and physical determinants of ill-health.
Current studies are being undertaken in the negotiation of risk in cancer and the impact of chronic conditions such as epilepsy on patients’ quality of life. The Implementation Science stream aims to include patients, carers and clinicians in decision-making and negotiated care, and to combine data sources such as interviews, focus groups and large-scale surveys, to ensure rich data translates into practice. The stream has developed a range of projects for collaborations across Macquarie University and external healthcare providers in oncology, epilepsy and hearing health.
Publications of interest
Determinants of health and wellbeing in refractory epilepsy and surgery:The Patient Reported ImpleMentation sciEnce (PRIME) model Epilepsy & Behaviour Vol 92 March 2019
Navigating the healthcare maze: a new model of care for epilepsy The Health Advocate AHHA Issue 52/February 2019
CHRIS Working paper #104 Fit for purpose: OrganisationaL PrOdUctivity and woRkforce wellbeIng in workSpaces in Hospital (FLOURISH): A multimethod qualitative study protocol. Frances Rapport, Emilie Auton, John Cartmill, Jeffrey Braithwaite, Patti Shih, Anne Hogden, Robyn Clay-Williams
CHRIS Working paper #105 Promoting faster pathways to surgery: a clinical audit of patients with refractory epilepsy. Virginia Mumford, Frances Rapport, Patti Shih, Rebecca Mitchell, Andrew Bleasel, Armin Nikpour, Geoffrey Herkes, Amy MacRae, Melissa Bartley, Sanjyot Vagholkar, Jeffrey Braithwaite
Stream Team Members
Jim Smith Research Fellow E: email@example.com
Rebecca Seah - Research Assistant E: firstname.lastname@example.org
Patti Shih - Honorary Research Fellow E: email@example.com
Anne Hogden - Honorary Research Fellow E: firstname.lastname@example.org
Selected Stream Projects
Content owner: Australian Institute of Health Innovation Last updated: 21 Mar 2019 1:58pm