RArEST Project

Rare Disease Awareness, Education, Support and Training (RArEST) Project

The Rare Disease Awareness, Education, Support and Training (RArEST) Project is led by the Centre for Healthcare Resilience and Implementation Science at the Australian Institute of Health Innovation.

Project members - Macquarie University

Project description

The Rare Awareness, Education, Support and Training (RArEST) project will develop and deliver rare disease awareness resources, education, support, and training with a focus on mental health, and social and emotional wellbeing. Stream 3 of the RArEST project is led by Associate Professor Zurynski. The focus in Stream 3 is on building capacity in meaningful consumer engagement and co-design throughout the Rare Disease sector.