Legislation, Privacy and Guidelines for Human Research

Legislation, Privacy & Guidelines - Human Research

Links to key NSW, AU and international privacy, records, human tissue laws (incl. the Privacy Act and GDPR), plus core ethics and research integrity guidelines (NHMRC, National Statement, Helsinki, MQ data mgt) for human research.

NSW legislation:

• Anatomy Act 1977
• Human Tissue Act 1983
• Privacy and Personal Information Protection Act 1998 No. 133
• Commission for Children and Young People Act 1998
• State Records Act 1998
• Health Records and Information Privacy Act 2002

Australia and international:

• Privacy Act 1988
  • Guidelines under Section 95 of the Privacy Act
  • Guidelines Approved under Section 95A of the Privacy Act
• EU General Data Protection Regulation (GDPR) research implications

Guidelines

• NHMRC: PAYMENT of PARTICIPANTS in research
• National Statement on Ethical Conduct in Human Research
• Australian Code for the Conduct of Responsible Research
• Macquarie University Systems and Data Management Guidelines
• Challenging Ethical Issues in Contemporary Research on Human Beings
• Australian Electoral Commission Supply of Elector Information for use in Medical Research
• Statement on Consumer and Community Participation in Health and Medical Research
• World Medical Association Declaration of Helsinki (8th revision)
• Oral History Association of Australia Guidelines of Ethical Practice 2007