Motor Neurone Disease fundraiser challenge

10 September 2015

On Sunday, more than 150 Fire & Rescue NSW (FRNSW) firefighters suited up in full firefighting equipment to climb the 1504 stairs of the Sydney Tower Eye to raise much needed funds for research into Motor Neurone Disease (MND).

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Through this highly successful event Fire & Rescue NSW have raised over $173,441 to date, which will go towards finding a cure for Motor Neurone Disease.

The event was organised by FRNSW Firefighter Matthew Pridham, who had been inspired to run the event in support of his best friend, Adam Regal.

“Adam was diagnosed with Motor Neurone Disease about 18 months ago and since then he’s been determined to raise awareness of it so I wanted to help him with that cause.

“With the help of my fellow firefighters, we’re trying to get more people aware of Motor Neurone Disease and raise money which will go towards finding a cure,” he said.

Professor Dominic Rowe is the head of Macquarie University Hospital’s MND clinic, the largest of its kind in Australia.

“MND is an unpredictable and wretched disease. While 10 per cent of patients have MND due to inheriting a faulty gene, 90 per cent of patients have sporadic MND, with no known cause.”

“We are thrilled with the donation from Fire and Rescue NSW to our research centre, because it is only with research that we will understand what the elements that cause MND are, how it progresses, and ultimately lead to therapies that slow and stop the disease.”

Both the Fire & Rescue NSW Commissioner, Greg Mullins, and Assistant Commissioner Gerry Byrne who attended the event, have praised and expressed support for the efforts of the fire & rescue community.

For more information about this worthy cause go to:

https://www.everydayhero.com.au/event/firiesmnd/adamsstory

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Filed under: Health & medicine Research Sport