Comments on: New hope for a cure

By: David Han

David Han — Mon, 09 Jan 2017 01:15:07 +0000

Hi Katherine

I’m terribly sorry to hear about this.

Please contact Macquarie Neurology at (02) 9812 3720 or email info@macquarieneurology.com.au

You can find more information on the website: http://www.macquarieneurology.com.au/pages/contact-details.html

Warm regards
David

By: Katherine Oszpet

Katherine Oszpet — Fri, 06 Jan 2017 03:00:53 +0000

Professor Rowe, my name is Katherine Oszpet and I was diagnosed as having motor neurone disease last July, 2016.
I am 53 years old and my mother also died from it in 2011. She was 75.

So far it’s in my right leg from my knee to my foot, I’m in a wheelchair now and my right arm is also showing weakness.

I would really like to be a part of your research into this terrible disease.

My email is above….please consider me to be included.

Thank you
Katherine

By: Helen Durant

Helen Durant — Mon, 19 Aug 2013 04:08:16 +0000

My lovely little Mum died of this disease in March 1998. Her Motor Neurone was particularly aggressive and she died within six months of diagnosis, hers being Bulbus Palsy which affected her ability to be able to swallow, she refused to be treated by stomach peg feeding, so death slow and agonising. If ever there was a strong case for voluntary euthanasia then this was it as she begged me daily to help her to die.

A cure for this terrible disease would be wonderful.

Helen D.