Groundbreaking research into finding a cure for MND

Groundbreaking research into finding a cure for MND

Thanks to the generosity of alumni and the community, researchers at Macquarie University’s MND Research Centre are making inroads into finding a cure for the disease.

At the annual Gala Dinner and Fundraiser in June, Professor Dominic Rowe presented the latest findings from a recent world-first clinical trial known as the Lighthouse Project.

Phase One of the trial tested the safety and tolerability of an anti-retroviral therapy called Triumeq on forty Australian men and women with sporadic MND.  Findings show the potential to slow the progression of MND substantially in a proportion of people with the disease.

“The aim of the Lighthouse Project is to slow or stop activation of endogenous retroviruses in sporadic MND,” said Professor Rowe.  “Phase One is now completed and data results were presented at the ENCALS (European Network to Cure ALS) meeting in Oxford, UK in June. Discussions had at this meeting were promising and we are now looking for funding for Phase 2A International Trial which will start in three to six months’ time.”

Thanks to the generosity of supporters contributing to more than 1.8 million dollars last year, the MND Research Centre has grown significantly.  It is the largest of its kind in Australia, employing more than 70 researchers and has the country’s largest MND biobank.

“Through the strength, passion and commitment of the MND community we get closer and closer to finding a cure, whilst continuing to provide the best possible care for people affected by MND, regardless of their financial situation.  All donations, both large and small, make a difference and bring us closer to our goal. “

“This will potentially see people with MND lead much longer lives after diagnosis”, Professor Dominic Rowe recently told Ray Hadley and listeners of his morning radio show. “Theoretically if we can slow the rate of progression of MND by50 per cent we can turn this disease that on average kills people in two to three years, to give them a survival of more like ten years.”

Without the support of generous donors, these trials would not have been possible.

More about MND Research at Macquarie University.

Content owner: Advancement Last updated: 11 Jun 2019 1:58pm

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