A different way to donate
Another way donors can help MND researchers is by donating bodily samples to the MND biobank.
Established in 2013, the Macquarie University Neurodegenerative Disease Biobank is one of the world’s largest longitudinal MND biobanks and is an integral part of the MND research program.
All people living with MND who attend the clinic, together with their families and supporters, are invited to participate in the Biobank.
Participation involves providing samples such as blood, urine, saliva, hair or skin along with clinical and lifestyle information. Participants are asked to donate samples on more than one occasion, as this allows research into biological changes over time.
Samples are stored and made available for neurodegenerative disease research now and in the future. These are a valuable resource for researchers to increase our understanding of neurodegenerative disease with the overall goal to identify treatments and preventative measures.
This resource has grown rapidly with nearly 700 participants, 1,600 collections and more than 24,000 samples available for research. So far donated samples have been used in 14 research projects, ranging from gene discovery to biomarkers.
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Content owner: Advancement Last updated: 11 Jun 2019 1:58pm